Primary sclerosing cholangitis is the inflammation and scarring of the bile ducts (tubes carrying bile) located inside and outside of the liver. Bile is digestive fluid that is transported from your liver to your small intestine through the bile ducts. PSC can cause the bile ducts to narrow and lead to build up of bile in the liver. This can cause progressive liver damage and over time in severe cases can lead to liver failure and need for liver transplant. It can also increase the risk of infection in bile duct, liver cancer, and bile duct cancer.
Primary sclerosing cholangitis is the inflammation and scarring of the bile ducts (tubes carrying bile) located inside and outside of the liver. Bile is digestive fluid that is transported from your liver to your small intestine through the bile ducts. PSC can cause the bile ducts to narrow and lead to build up of bile in the liver. This can cause progressive liver damage and over time in severe cases can lead to liver failure and need for liver transplant. It can also increase the risk of infection in bile duct, liver cancer, and bile duct cancer.
If you are experiencing symptoms or challenges with your care, you may wish to seek a second opinion.
Connect with fellow PSC patients and caregivers online and get further support through advocacy group resources.
Find more resources below for you or a loved one.
Looking to learn more? Below are trusted medical sites where you can search for scholarly articles and information about PSC. Always speak with your doctor or medical professional about your findings.
PubMed
PubMed is a free resource supporting the search and retrieval of biomedical and life sciences literature with the aim of improving health–both globally and personally.
National Organization for Rare Disorders (NORD).
NORD's mission is to improve care, advance research, and drive policy for patients and families affected by rare diseases.
American Liver Foundation
ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease.
Learn More
European Reference Network for Rare Liver Diseases (ERN RARE-LIVER)
ERN RARE-LIVER is a Europe-wide network for centres of excellence in the clinical management of rare liver disease in adults and in children. The network aims to improve the standards of clinical knowledge and of patient care in rare liver diseases throughout Europe. Learn more about PSC here.
Psychology Today
Find a mental health professional near you.
Primary Sclerosing Cholangitis and Social Security Disability
Read about how people living with PSC can file for social security disability.
Mental Health America (MHA)
Mental Health America is committed to promoting mental health and preventing mental illness through advocacy, research, education, and services.
Each patient has their own journey with PSC. Experiences shared in the podcasts and websites below should not be substituted for medical advice. Always speak to your doctor or a medical professional about your condition.
