Patient Stories

Real People, Real Impact:
Patient Stories

Learn about the powerful ways patients harness their diagnoses for good.

I'm so grateful to share my story. Invisible illness is rarely talked about, let alone seen.
Ally Gordon
Former competitive swimmer

Why participate in patient stories?

With limited information in the world about rare diseases, we believe in amplifying the real voices of rare disease patients and sharing their stories with the broader community.

By telling your story through PatientWing, you help build community around your condition, and make information about rare diseases more accessible to everyone. Click below to learn more about What’s involved in a Patient Story.

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